>>news:1177148594.478941.16120@
b75g2000hsg.googlegroups.com...
>> | Don't ask me what's going on because I haven't got a clue ;) One
>> | thing I've noticed about M.E. sufferers is we're all too damn smart
>> | (or were) to be suffering with this Sh*t of an illness.. and we all
>> | seem to make spelling mistakes,t akes me ages to write now. I have
>> | been up and down like a yoyoi with this illness.. I was always so
>> | strong and always so smart and now I just feel pretty damn useless
>> | with a really slow and tired brain, oh, and all alone ;--( No,
>> | really. I don't even know if I have the mental functioning to find
>> | this place again...How pathetic is that (Rhet.)? And I used to be a
>> | bloody optimist... Finding it really hard to come to terms with the
>> | 'my life as I knew it has gone' thing... Most of the time I just feel
>> | screwed now, and not in a good way ;) I miss my brain and I miss my
>> | training and my life... Please say hello I don't bite ): Oh and my
>> | name is Steve
>> Please do keep posting here as this was my first on-line ME support group.
>> I
>> have been posting here since 1998 and I'd like to see this group come
>> alive
>> again.
>> --
>> Spencer Manchester UK
>> Wit levels low. Attempting to compensate.
>
> Thank you Spencer, much appreciated!
>
> I hope you are doing O.K., I find it amazing at how long so many ppl
> have been coping with this illness... my hat goes off to you,
> truly...respect. I have had this illness for nearly two years now,
> following two years of severe long-term sleep deprivation where I was
> still living, working, and studying 'til my brain got shot to hell
> along with my body. I had to battle to get diagnosed with the sleep
> deprivation for over a year, by which time I couldn't finish my own
> sentences or think properly, no enrgy, drooping pressured eyes,
> painful just walking short distances, you'll know all the other
> symptoms. I had to battle the medical profession throughout, I wasn't
> given any treatment and I was told that I couldn't be admitted to a
> sleep clinic or even see a sleep consultant as there wasn't any
> funding, by the time I did and travelled an exhausting 100miles to see
> one I was told I had all the symptoms of M.E., so I then had the blood
> tests and the consultation interviews in another city then they
> confirmed it last July. I really am trying to stay positive, but I
> really miss my life so much. I haven't actually had 'any' help and
> because I was late being diagnosed I'm told that doesn't help my
> chances of recovery either. I have been trying alot of things, but my
> wit levels are low also as is my motivation lately. My father died on
> the 1st March and although my family love me alot I very rarely see
> them at all, I used to, I think they still see me as the person who
> can handle almost anything, but in truth I'm not, far from it. But I
> am determined to find a way to get through this and recover I just
> don't know how and don't have any support or help at all. Any help or
> advice on the best ways to cope would be welcome.
>
> Thank you again Spencer, and may the force be with you.
>
> Steve
>
> Hi fellow Steve! :)
> best things I've found for this shitty illness:
> avoid strress, INCLUDING being wuund up about being sick, hard, but
> important
>
> -gabapentin helps pain, amatryptilin (spelling?) helps with sleep.
> -Selenium and fish oil supplemnts in *normal* dosage help a tad.
> -getting diagnosed with pituitary problems causing low testosterone, so
> getting testosterone replacement shots, helped a ton.
> -listening to mp3 player with relaxing/cool/uplifting music helps a lot with
> mood, always have it in aorudn house when not wathing TV etc.
> -AVOID stress, is said that, but avoid shit like soap operas, horrors in the
> news etc that get you down.
>
>
http://www.silverblades-suitcase.com/mecfs/mecfs.htm
> my site's ME/CFS section
>
> get well I hope, mate! :)- Hide quoted text -
>
> - Show quoted text -
