| Re: Just Joined... Hello Strangers! |
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Group: uk.people.support.cfsme · Group Profile
Author: romeo.maydieromeo.maydie Date: Apr 21, 2007 16:10
On 21 Apr, 20:30, "Spencer ©¿©¬" supahat.com> wrote:> yahoo.com> wrote in message
>
> news:1177148594.478941.16120@b75g2000hsg.googlegroups.com...
> | Don't ask me what's going on because I haven't got a clue ;) One
> | thing I've noticed about M.E. sufferers is we're all too damn smart
> | (or were) to be suffering with this Sh*t of an illness.. and we all
> | seem to make spelling mistakes,t akes me ages to write now. I have
> | been up and down like a yoyoi with this illness.. I was always so
> | strong and always so smart and now I just feel pretty damn useless
> | with a really slow and tired brain, oh, and all alone ;--( No,
> | really. I don't even know if I have the mental functioning to find
> | this place again...How pathetic is that (Rhet.)? And I used to be a
> | bloody optimist... Finding it really hard to come to terms with the
> | 'my life as I knew it has gone' thing... Most of the time I just feel
> | screwed now, and not in a good way ;) I miss my brain and I miss my
> | training and my life... Please say hello I don't bite ): Oh and my
> | name is Steve
>
> Hi Steve and welcome!
>
> This used to be a very active NG but now all the action has moved to web
> based groups.
> There are many on Yahoo and MSN, but I still try and keep this group alive,
> as I much prefer the ease of use on Usenet and the plain text format.
> However if you do want an active friendly group I recommend
> The-Sleepy-Singles-Meeting-Placehttp://groups.msn.com/login_info.msnw?referer=join&ru......
>
> Please do keep posting here as this was my first on-line ME support group. I
> have been posting here since 1998 and I'd like to see this group come alive
> again.
> --
> Spencer Manchester UK
>
> Wit levels low. Attempting to compensate.
Thank you Spencer, much appreciated!
I hope you are doing O.K., I find it amazing at how long so many ppl
have been coping with this illness... my hat goes off to you,
truly...respect. I have had this illness for nearly two years now,
following two years of severe long-term sleep deprivation where I was
still living, working, and studying 'til my brain got shot to hell
along with my body. I had to battle to get diagnosed with the sleep
deprivation for over a year, by which time I couldn't finish my own
sentences or think properly, no enrgy, drooping pressured eyes,
painful just walking short distances, you'll know all the other
symptoms. I had to battle the medical profession throughout, I wasn't
given any treatment and I was told that I couldn't be admitted to a
sleep clinic or even see a sleep consultant as there wasn't any
funding, by the time I did and travelled an exhausting 100miles to see
one I was told I had all the symptoms of M.E., so I then had the blood
tests and the consultation interviews in another city then they
confirmed it last July. I really am trying to stay positive, but I
really miss my life so much. I haven't actually had 'any' help and
because I was late being diagnosed I'm told that doesn't help my
chances of recovery either. I have been trying alot of things, but my
wit levels are low also as is my motivation lately. My father died on
the 1st March and although my family love me alot I very rarely see
them at all, I used to, I think they still see me as the person who
can handle almost anything, but in truth I'm not, far from it. But I
am determined to find a way to get through this and recover I just
don't know how and don't have any support or help at all. Any help or
advice on the best ways to cope would be welcome.
Thank you again Spencer, and may the force be with you.
Steve
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