Myofascial Pain Help
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Myofascial Pain Help         


Author: sara
Date: Feb 2, 2008 21:39

Hi, I'm new to this group. My name is Sara, 29yo living in Seattle.
I've been suffering from MPS for over 3yr and can't see a way out. My
life is like a bad relationship--I've suffered too much pain for any
future good to offset it.

I'm completely disabled by this, barely able to get out or make
friends, even my hobbies are too painful. The pain has worsened again
in the last couple months and now the only thing that helps are PT 2x/
wk and drinking. Not a lot, couple drinks per night prn, but I don't
like doing this. I'm barely surviving and don't know what to do.

I have some family support, mom's trying to get me into a rehab doc or
physiatrist, but does anyone have any kind of recovery story from
MPS? Even if I had friends I could tell the truth to they wouldn't
understand. I sit at home alone all day, watching tv and unable to do
anything else. The loneliness breaks my heart.

I'm not suicidal, absolutely not thinking of hurting myself in any
way. I just want some kind of a life. Thanks.
sara
37 Comments
Re: Myofascial Pain Help         


Author: Michael B
Date: Feb 3, 2008 02:55

Well, shucks, Sara. I'd say you probably picked the right
newsgroup. But in addition, there are some other places
that you might also want to drop into.

First, there is a group of FMS and MPS folks that have a
chat group called the Tenderness group. It is moderated
and less likely to be beset by some of the fairly common
flame threads.

Also, there was an active moderated group that had the
name of "alt.med.fibromyalgia.recovery.info" that you
might check, but it is no longer active. But the originator is
a member of this group and posts the FAQ every so often.

You are in Seattle, you might want to drop by the chronic
pain group, too. Banjo Babe is in Seattle, you might want
to hook up with her.

Speaking of BanjoBabe, she has the list of CoCure doctors
from that area that know about the condition and have been
recommended by others as "good doctors".
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Re: Myofascial Pain Help         


Author: DGSaba
Date: Feb 4, 2008 09:33

On Feb 2, 11:39 pm, sara gmail.com> wrote:
> Hi, I'm new to this group. My name is Sara, 29yo living in Seattle.
> I've been suffering from MPS for over 3yr and can't see a way out. My
> life is like a bad relationship--I've suffered too much pain for any
> future good to offset it.
>
> I'm completely disabled by this, barely able to get out or make
> friends, even my hobbies are too painful. The pain has worsened again
> in the last couple months and now the only thing that helps are PT 2x/
> wk and drinking. Not a lot, couple drinks per night prn, but I don't
> like doing this. I'm barely surviving and don't know what to do.
>
> I have some family support, mom's trying to get me into a rehab doc or
> physiatrist, but does anyone have any kind of recovery story from
> MPS? Even if I had friends I could tell the truth to they wouldn't
> understand. I sit at home alone all day, watching tv and unable to do
> anything else. The loneliness breaks my heart.
>
> I'm not suicidal, absolutely not thinking of hurting myself in any
> way. I just want some kind of a life. Thanks. ...
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Re: Myofascial Pain Help         


Author: LoriB.o.B.
Date: Feb 4, 2008 14:05

On Feb 3, 2:55 am, Michael B bellsouth.net> wrote:
> Well, shucks, Sara. I'd say you probably picked the right
> newsgroup. But in addition, there are some other places
> that you might also want to drop into.
>
> First, there is a group of FMS and MPS folks that have a
> chat group called the Tenderness group. It is moderated
> and less likely to be beset by some of the fairly common
> flame threads.
>
> Also, there was an active moderated group that had the
> name of "alt.med.fibromyalgia.recovery.info" that you
> might check, but it is no longer active. But the originator is
> a member of this group and posts the FAQ every so often.
>
> You are in Seattle, you might want to drop by the chronic
> pain group, too. Banjo Babe is in Seattle, you might want
> to hook up with her.
>
> Speaking of BanjoBabe, she has the list of CoCure doctors ...
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Re: Myofascial Pain Help         


Author: Michael B
Date: Feb 4, 2008 14:12

Hey Sara!!
The (( )) was a gentle 'fibro hug'
You could use a few of those, I'll bet.
Anybody got one for Sara??

On Feb 4, 5:05 pm, "LoriB.o.B." comcast.net> wrote:
! Thanks for thinkin' of me ((Michael)).
no comments
Re: Myofascial Pain Help         


Author: LoriB.o.B.
Date: Feb 4, 2008 14:13

On Feb 2, 9:39 pm, sara gmail.com> wrote:
> Hi, I'm new to this group. My name is Sara, 29yo living in Seattle.
> I've been suffering from MPS for over 3yr and can't see a way out. My
> life is like a bad relationship--I've suffered too much pain for any
> future good to offset it.
>
> I'm completely disabled by this, barely able to get out or make
> friends, even my hobbies are too painful. The pain has worsened again
> in the last couple months and now the only thing that helps are PT 2x/
> wk and drinking. Not a lot, couple drinks per night prn, but I don't
> like doing this. I'm barely surviving and don't know what to do.
>
> I have some family support, mom's trying to get me into a rehab doc or
> physiatrist, but does anyone have any kind of recovery story from
> MPS? Even if I had friends I could tell the truth to they wouldn't
> understand. I sit at home alone all day, watching tv and unable to do
> anything else. The loneliness breaks my heart.
>
> I'm not suicidal, absolutely not thinking of hurting myself in any
> way. I just want some kind of a life. Thanks. ...
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Re: Myofascial Pain Help         


Author: LoriB.o.B.
Date: Feb 4, 2008 14:17

On Feb 4, 2:12 pm, Michael B bellsouth.net> wrote:
> Hey Sara!!
> The (( )) was a gentle 'fibro hug'
> You could use a few of those, I'll bet.
> Anybody got one for Sara??
>
> On Feb 4, 5:05 pm, "LoriB.o.B." comcast.net> wrote:
> ! Thanks for thinkin' of me ((Michael)).

*********************
That was Really fast there ((Michael))!!! We must be on the same
wavelength!!!
Later,
Kindly,
LoriB.o.B.
ps-dang, I forgot to tell ((Sara)) I have MPdisease worse than the
FMS(secondary). Maybe she'll see this b4 I talk to her more as I'm
havin' a ReAlLy BaD day.
**********************
no comments
Re: Myofascial Pain Help         


Author: Cheeky Bastard
Date: Feb 7, 2008 16:25

"LoriB.o.B." comcast.net> wrote in message
news:0c3caa44-daca-4b4a-a6a2-f4ce93add949@q21g2000hsa.googlegroups.com...
> On Feb 4, 9:20 pm, "Cheeky Bastard" aol.com> wrote:
>> "LoriB.o.B." comcast.net> wrote in message
>>
>> news:84d5dd9e-9651-4cc4-8cee-9cd5144cf9d8@s37g2000prg.googlegroups.com...
>>
>>
>>
>>> On Feb 3, 2:55 am, Michael B bellsouth.net> wrote:
>>>> Well, shucks, Sara. I'd say you probably picked the right
>>>> newsgroup. But in addition, there are some other places
>>>> that you might also want to drop into.
>>
>>>> First, there is a group of FMS and MPS folks that have a
>>>> chat group called the Tenderness group. It is moderated
>>>> and less likely to be beset by some of the fairly common
>>>> flame threads.
>>
>>>> Also, there was an active moderated group that had the ...
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Re: Myofascial Pain Help         


Author: LoriB.o.B.
Date: Feb 7, 2008 16:44

>
>>> I'm sure besides myself others are amazed you can still type while
>>> drugged
>>> up.
>
>>>CB
>> ************************************
>> Ummmm,
>> I am NoT "drugged up" cb. I am only taking a tiny dose of tramadol
>> which does nada for my pain & makes me a little tired, which is what
>> I'm used to anyway since insomnia is my life.
>> Kindly,
>> LoriB.o.B.
>> ****************
>
> Well that was back then and now is now. Last time(s) we tried to talk I
> couldn't understand you. (It was like when Lynn and I take our sleeping
> pills only you stay awake where we just zonk out)
> Funny I just imported my addresses off my old laptop and you were in there
> along with others I thought I lost. ...
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Re: Myofascial Pain Help         


Author: Cheeky Bastard
Date: Feb 7, 2008 17:00

"LoriB.o.B." comcast.net> wrote in message
news:3b3fa5a8-4cad-4607-b8ed-81d215073dfb@e10g2000prf.googlegroups.com...
>
>>
>>>> I'm sure besides myself others are amazed you can still type while
>>>> drugged
>>>> up.
>>
>>>>CB
>>> ************************************
>>> Ummmm,
>>> I am NoT "drugged up" cb. I am only taking a tiny dose of tramadol
>>> which does nada for my pain & makes me a little tired, which is what
>>> I'm used to anyway since insomnia is my life.
>>> Kindly,
>>> LoriB.o.B.
>>> ****************
>>
>> Well that was back then and now is now. Last time(s) we tried to talk I
>> couldn't understand you. (It was like when Lynn and I take our sleeping ...
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